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Welcome
Welcome to the official website for the 1st Annual Scramble For A Cure
Golf Tournament. The tournament is intended to raise awareness of Pulmonary
Hypertension and to raise money for the
Pulmonary Hypertension Association,
a great organization that not only provides money to support research in looking
for a cure, but also provides a variety of programs to help support patients and
their families. We also want everyone to come out and have a good time for
a good cause.
Pulmonary Hypertension is a rare, often misdiagnosed, life threatening illness.
It can be simply defined as high blood pressure in the arteries going to the lungs.
The disease causes the patient to suffer severe shortness of breath which can make
just walking up the stairs or walking to the mailbox a struggle. It is also
very difficult on the heart and eventually leads to heart failure. Currently,
there is no cure and the best treatment available costs about $100,000 a year and
requires the patient to be on a 24 hour a day IV pump to deliver a medicine that
must be kept cold at all times as it is unstable. There have been a lot of
advances in the last 10 years in the variety of treatments available (Viagra, oddly
enough being one of them), but there is still a lot of work to be done.
The inspiration for this tournament is the memory of Heather Massey, who passed
away a few years ago as a result of Pulmonary Hypertension at the too young age
of 28. She fought a good fight but in the end it was too much for her.
We thought it would be a great way to honor her memory by holding this tournament
and help raise awareness for a disease that many have never heard of.
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